Hey all
I've had a very long journey to get this point, and i'm on the home stretch till my first surgery, but am struggling. I've just found this site and It's reassuring being able to read others posts about their journeys and know that I'm not alone.
I have been diagnosed with: ischiofemoral impingement, femoroacetabular impingement (socket too deep), labral tear, trochanteric bursitis, deep gluteal syndrome (trapped/stuck sciatic nerve in glute area), and also a problem with femoral version, (although this is just within the limit of not having to operate on, although apparently it will be making the other things worse) I have all of this in both hips. I also have inflammation in my si joint on one side, and a fusion has been reccommended, but we hope that once the hips are sorted, this will improve.
I have laparoscopic surgery booked in june and october (one hip each time) and i'm struggling with pain and mobility with 3 months to go. I nearly cried when they said it would be a 6 month wait for the first surgery, and i'm terrified that there will be some reason it will have be delayed for another 6 months. I'm not even sure how I will physically manage another 3 months.
I cannot go for a walk, and cannot even walk in the pool now, though can swim...when our small local pool is open.
It's been a fight to get diagnosed after being told for 6 years that I just need to 'do pilates' and the eventually being referred around a selection of specialists with a 6 month wait time each.
In the last year I have also been diagnosed with insulin dependent diabetes and have been struggling with not being able to 'pop out for a walk' ( or even hang out the washing) to improve my blood sugar.
I feel broken, and i'm trying to give myself permission to be 'broken'. I keep thinking am I really in this much pain? , and then do too much and end up dry retching (which is apparently my bodies cut out switch). I doubt myself because of all the previous doubt from doctors, and because I cannot see this (ie not a visible problem), and feel too young to be clinging on to a shopping trolley at the supermarket with barely anything in it.
I feel stupid having to choose either to do chores and be non functional for days, or recline in bed and be dysfunctional anyway.
Apologies for the rant. Has anyone else here got the ischiofemoral impingement? I've heard its reasonably rare.
T
I've had a very long journey to get this point, and i'm on the home stretch till my first surgery, but am struggling. I've just found this site and It's reassuring being able to read others posts about their journeys and know that I'm not alone.
I have been diagnosed with: ischiofemoral impingement, femoroacetabular impingement (socket too deep), labral tear, trochanteric bursitis, deep gluteal syndrome (trapped/stuck sciatic nerve in glute area), and also a problem with femoral version, (although this is just within the limit of not having to operate on, although apparently it will be making the other things worse) I have all of this in both hips. I also have inflammation in my si joint on one side, and a fusion has been reccommended, but we hope that once the hips are sorted, this will improve.
I have laparoscopic surgery booked in june and october (one hip each time) and i'm struggling with pain and mobility with 3 months to go. I nearly cried when they said it would be a 6 month wait for the first surgery, and i'm terrified that there will be some reason it will have be delayed for another 6 months. I'm not even sure how I will physically manage another 3 months.
I cannot go for a walk, and cannot even walk in the pool now, though can swim...when our small local pool is open.
It's been a fight to get diagnosed after being told for 6 years that I just need to 'do pilates' and the eventually being referred around a selection of specialists with a 6 month wait time each.
In the last year I have also been diagnosed with insulin dependent diabetes and have been struggling with not being able to 'pop out for a walk' ( or even hang out the washing) to improve my blood sugar.
I feel broken, and i'm trying to give myself permission to be 'broken'. I keep thinking am I really in this much pain? , and then do too much and end up dry retching (which is apparently my bodies cut out switch). I doubt myself because of all the previous doubt from doctors, and because I cannot see this (ie not a visible problem), and feel too young to be clinging on to a shopping trolley at the supermarket with barely anything in it.
I feel stupid having to choose either to do chores and be non functional for days, or recline in bed and be dysfunctional anyway.
Apologies for the rant. Has anyone else here got the ischiofemoral impingement? I've heard its reasonably rare.
T